Sofia's Story

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We’re honored to have Sofia Petersson from Sweden as our ambassador for Alzheimer’s Disease. Sofia was diagnosed with Alzheimer’s Disease in her late 30s. Her father, uncle and grandmother also suffered from the disease.

 

“I could not have imagined that seventeen years after my father’s death, I would receive the news that I was affected as well. Unfortunately, I had to struggle at first to be believed by doctors. When I passed most of the standardized tests, the doctors said that it was nothing to worry about. I had to change doctors twice but I finally got the right help when I got in contact with my father’s old retired doctor. While the medical investigation was going on, I studied to be a health educator and managed a three-year education at the university. My goal is to write about the many challenges of young-onset Alzheimer’s patients, and especially women’s experiences.”

 

Sofia Petersson has been an on-going source of inspiration to the co-founders and members of the Women’s Brain Project, and as is a WBP Ambassador. She was kind enough to share her story with us through the blogs you see below, as she navigated the challenging waters of living with early-onset Alzheimer’s and trying to find a clinical trial who would accept her despite her young age. Despite no longer receiving updates from her to publish here, as she is now fully focused on her health and spending time with her loved ones, we are keeping these records public for anyone they may inspire to keep trying, and will continue to support Sofia as best we can offline.